Caring for a Loved One with an Advanced Illness

Caring for someone suffering from a chronic or advanced illness can be very difficult.
Suddenly you become inundated with information and instructions. Everyone has a different opinion, but no one has the answer you want to hear. We understand.
MJHS Hospice is dedicated to guiding you through this process on your terms. The resources in this section are a compilation of questions frequently asked by caregivers. We hope that we can be a source of support and clarity during this challenging time.
Need Hospice Care?
Contact 212-420-3370
How Volunteers Can Help Caregivers
Providing hospice care is a team effort. And volunteers, along with their Volunteer Coordinators, are an integral part of this effort.
Caring For Holocaust Survivors
Resources for professional caregivers with background and information on providing care to Holocaust Survivors at the end of life.
Grief and Renewal After the Loss of a Holocaust Survivor
Children and grandchildren of Holocaust Survivors often respond to loss differently. Our six-part series will address how this issue shapes our lives.
Caring for Holocaust Survivors: Clinicians Guide
This guidebook is for clinicians to provide a deeper understanding of end-of-life issues that may manifest in Holocaust Survivor patients.
Caring for Holocaust Survivors With Sensitivity at the End of Life – Multimedia Library
This digital library contains resources about how to provide person-centered, trauma-informed care to Holocaust survivors and their families.
Caring for Holocaust Survivors With Sensitivity at the End of Life | On-Demand E-Learning Modules
This online training toolkit aims to sensitize and prepare health care professionals working with Holocaust Survivors and their families.
Understanding Pediatric Hospice
Understanding Pediatric Hospice Can Be Confusing. We want to make it a bit easier by explaining what it is so you can understand what this kind of care includes and how it may benefit you and your ill child.
Top 5 Myths About Hospice Care
Hospice care is for patients with a condition that gives them less than six months to live. Read the top 5 myths people have about the treatment option.
The Difference Between Hospice and Palliative Care
We want the best for our loved ones. This is why knowing the difference between palliative and hospice care and understanding which meets your loved one’s preferences is useful. While there are many misconceptions, neither palliative nor hospice care necessarily prolongs life, nor do they hasten death. So, what is the difference between the two?
Is Hospice Care Right for Your Loved One with Dementia?
Hospice care is an excellent way to ensure someone with advanced dementia receives the comforting, specialized care they need. This article will help you understand your hospice care options. We aim to offer you the support you need while navigating this next stage in the care of your loved one.
Does Medicare Cover Hospice Care?
Does Medicare cover hospice care? It seems like a straightforward question. Unfortunately, many family members discover that it’s challenging to find a simple answer when they start researching the Medicare benefits their loved ones are entitled to. We hope we can help.
What to Say to a Loved One Who is Dying
Hospice care can be an uncomfortable topic for many families. Find ways to ease the conversation with your loved ones today.
Helpful Tips for Describing Pain
Pain is very subjective, and it is essential to recognize that no two people experience pain in the same way. This article will provide helpful tips on getting a loved one to describe their level of pain.
Protecting Your Loved Ones From Heart Disease
Congestive Heart Failure (CHF), also known as Heart Failure, is when your heart gets damaged and is not pumping enough blood to meet your body's needs. Learn more.
Congestive Heart Failure (CHF) and You
Congestive Heart Failure (CHF), also known as Heart Failure, is when your heart gets damaged and is not pumping enough blood to meet your body's needs. Learn more.
Warning Signs of Dementia
Dementia can be a scary word. Learn about the early warning signs and what to do if you're noticing symptoms.
9 Tips for Visiting Someone in Hospice
There are things you can do to bring comfort and joy to a person in hospice. We pulled together the following tips from the hospice nurses, social workers, and clergy at MJHS Health System.
End-of-Life Care in the Bible
The Torah is called Etz Chayim, a tree of life, because it provides values, ethics, and laws by which Jews are commanded to live. But how we die is also part of how we live. Below are some key examples from the Torah and what they teach us about dying.
Why Jews Need to Talk About Death
Whether your reticence comes from anxiety, religious superstition, or fear of engaging with a morbid subject, experts advise everyone to consider these issues earlier rather than later. Some rabbis even encourage newly engaged couples to discuss advance care planning before their wedding and to revisit the topic when a child is born or around other lifecycle events. Read some tips on how to get this conversation going with your family members.
Jewish Ethical Wills (Tzava’ot)
Traditionally, Jewish ethical wills contained several items, including burial instructions, debts and obligations to be paid, requests that family members carry on specific religious traditions, and blessings over the family. But modern ethical wills are less about accounting and instruction and more about imparting wisdom or wishes or simply reviewing one’s life.
Jewish Perspectives on End-of-Life Care
Decisions concerning medical care in the final stages of life present a range of Jewish ethical and legal problems. While Jewish tradition maintains that human life is of infinite value and that its preservation overrides every other religious imperative, relieving pain and allowing for the soul’s peaceful departure are also well-established values. Learn More.
Judaism, Hospice and Palliative Care: Questions and Answers
Patients are typically referred to hospice care when further medical treatment is not likely to reverse the course of their disease. The decision to choose hospice care is a personal one, as is the amount in which Jewish tradition informs one’s choices for end-of-life care. The following is a general overview of contemporary Jewish perspectives on the topic.
Must-Know Words and Phrases Related to End-of-Life Care
Navigating any stressful and significant situation requires effective communication and clear understanding. To help you better understand the various issues that may arise, both in a general and Jewish context, the list below explains the terms you are likely to encounter.
The Role of Art & Music for Patients with Dementia and their Families
Visual art, music, and literature make the world we live in worthwhile. Enjoying the Arts enriches people's lives with dementia and gives them a creative outlet to express their emotions. Learn about the Role of Music and Art Therapy doe people with dementia.
Meeting Veterans Special Needs at the End of Life
Veterans deserve end-of-life support from a care team that knows how to support, uplift, and addresses their unique and unspoken needs. Unfortunately, the strength that served them so well when on active duty often prevents veterans from asking for help. Learn about how MJHS Hospice goes the extra mile for veterans in our program.